The word “intersectionality” is becoming a commonly used word in the neurodivergent space, but what does it really mean and why is it so important? I only understood its importance in the last few years as I became aware that I had so many different aspects of myself: my personality, my heritage, and my abilities that crossed over to make my experience of the world around me unique, and in some cases more difficult.
Different parts of our identity do not exist in isolation. You cannot separate my blackness from my autisticness and you cannot separate me being non-binary from being black or from being autistic. These aspects make me who I am. I’m not just a carer; I’m an autistic and disabled carer. I’m not just a parent; I’m an autistic parent to a child who is also autistic.
I like to consider everyone in society when I am fighting for human rights. Human rights are exactly how they sound: rights for every human on the planet. So, when helping all humans thrive let’s think of how abilities, gender, race, culture and our physical environment can see some people needing extra support. For example, me being a carer in a major Australian city is difficult enough, but what about the Aboriginal carer living in a remote community? They are often disadvantaged due to being far away from city and the services it offers. Then I see myself as a black parent advocating for my son and my experience of this could be more challenging than a white parent. I often feel self-conscious when advocating with the school and relevant health systems. I feel aware that I may be seen as the stereotypical “angry black woman”, but this is not felt by everyone using these systems. We need to be aware that people who may appear to be in the same boat as us from the outside could have higher hurdles to jump because of who they are and the way they are viewed in society.
While I am fully aware of how my neurodivergence, my disabilities, my blackness and my gender and sexual identity can be hurdles, I am also acutely aware of my privileges and how others may not be as fortunate as I am to have my skills, abilities and social capital that help me thrive – or at times, survive. Not everyone who has the same disabilities as me has such a strong voice – they may even be non-speaking – or the platform and system literacy that I have. And for them, I will fight even harder. I will use my voice twice as hard for those who cannot speak up, whether that is due to disability or social oppression.
Even before I received diagnoses for my disabilities, which include autism, ADHD and fibromyalgia, and before I became a parent to a neurodivergent child, I cared and advocated for people with disabilities. I would like more people without disabilities to be allies and help us dismantle the current system which is limiting our potential.
To me, the sky is the limit for me and my son. We do not just want to be happy, we want to reach every goal we set for ourselves no matter how out of reach it may seem. But far too often I see a low bar being set by others, sometimes even parents of neurodivergent children, for example, discussions I see on social media from parents setting uninspiring goals for their neurodivergent children. Let’s not underestimate our potential.
I am living proof that despite my social hurdles, such as being a woman of colour in Australia, being a neurodivergent and disabled queer person, and a mother of a child with disabilities, I have had a solid 23-year career as a leading human rights advocate. I did this despite being raised in a household in Sierra Leone where my disability was not accepted. I had to constantly mask and act able bodied, which was truly exhausting and prevented me from being me. To lead this social change of bringing disabilities and intersectionality into the public consciousness, I have outed myself in every way, and I do this purely to help other people like me be proud of who they are and make society understand that people with disabilities do not need to be silent about who they are and what they need.
We need to keep talking about how we can live better in an ableist society until we are no longer seen as different but the same as everyone else. I don’t owe my medical history to anyone and it would be less exposing and more comfortable to keep it to myself, but I am sacrificing this in exchange for social change, so please join me in this movement regardless of your abilities.
Too many people wait until disability is at their doorstep before they care, but why not care before that happens? Why not advocate with us and create a fairer environment for everybody? Let’s create an environment where people with disabilities feel confident in who they are, feel confident in using their voice to advocate for themselves and others and see no limit to what they can achieve in life.
Written By: Khadija Gbla, for Yellow Ladybugs
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